Saturday, June 22, 2013

A Favourite Spot…

This photo is of a favourite, and oft visited, spot in north Burlington in my shooting days. I found the property so captivating that I took a chance and left a message in the mailbox asking if the owners might consider allowing me to photograph more of their property in exchange for a print. They graciously and generously agreed (I was permitted to the very back of their extensive and gorgeous property), and was given the privilege of photographing the property for a number of years.

On my last foray into the country last year, I asked my friend to drive by this laneway so that I could take one last look. No matter the season, it’s always stunning!

laneway

Download available here - https://www.dropbox.com/s/4j6qs2lizu2guv3/laneway.jpg

Friday, June 21, 2013

Job Posting…

Shouldn’t the ability to make the world go away be a perk of being seriously ill?

Before I go further I need to mention that when I speak of the world, I’m not thinking of the family and friends whose company brings me great joy. My closest friend’s visit today was anything but an intrusion, in fact her timing was impeccable. Somehow the universe lined up one of my more challenging days alongside her visit.

The outside world has been sticking it to me with hot pokers this week, and today was brutal. I needed help to take away the sting, and luckily both my friend and Suzanna are masters at the task. And both have fortified me for what will undoubtedly be a tough week ahead. Sometimes you see it coming, sometimes you don’t. This next one has me square in its sight.

The entrepreneurial spirit in me thinks that I might be on to something. Someone for hire who can hold the outside world at bay for a few days, that’s a gift that Suzanna and I would truly appreciate right now.

There are times when I think that the pain of dealing with bureaucracy and red tape outweighs the physical pain my body delivers around the clock. It would be lovely to hand over the reins to someone else to deal with the bills, the insurance companies, the pharmacy and the numerous support agencies to allow me to get a break. Not that there aren’t some really terrific people to be encountered along the way, but at times the idea of having a few completely uninterrupted days with my daughter is overwhelmingly desirable.

While I’m on that thought, it would be a tremendous bonus if that person could also step in to provide the body for the nurses to check over. Surely it wouldn’t be so bad if the record shows that my blood pressure, heart rate, blood oxygen and temperature looked a little more consistent for just a few days.

There is no way to keep the outside world away for any length of time it seems. It reaches in, and I have to reach out. However, I may yet work on that job description. I can’t have been the first to wish for a bit of peace during a time of life in which almost everyone agrees it’s most deserved.

Thursday, June 20, 2013

Still Hanging In…

My dearest friend will be paying us a visit tomorrow, a quick stopover in Toronto in the midst of a heavy work schedule that has her crisscrossing Canada for three seasons each year.

I’m always very happy to see her. However rare our opportunities have been to get together in person over the years, distance has never been an obstacle in our friendship. Granted, we’ve likely seen more of each other in the last eighteen months than in all the years leading up to them combined.

We’ll greet each other with a big hug and enjoy our hours together. The goodbyes however, get more difficult each time we part. We both know that it might be the last time we see each other. Yet we continue to end our visits saying that we’ll see other soon again.

There are friends whom I see more frequently, others less so when distance and busy schedules get in the way. There are also the friends (and family) for whom I know seeing me is overwhelmingly difficult.

I try to understand.

The hard part for me is not knowing if the last time I visited with a friend will have been the last time I’ll have seen them. I suspect for some, their perspective is that they’ve already said their goodbye to me. Sometimes I wonder if I missed it. Were they saying farewell and I didn’t recognize it for what it was?

Looking from the outside in, this situation is ugly. I’m hooked up to oxygen tubing, confined to bed, and I know it’s hard to watch me try to shift about in bed, or hobble to the bathroom, or see me wincing when I’m not doing a good job of covering up the physical pain.

From the inside out however, I’m still me. I still want to converse about everyday subjects, joke around and share in the ups and downs of the lives of my family and friends.

Inside, I’m still very much alive. My body may be wasting away, but my mind is sharp and wanting to keep engaged with life outside of this bedroom. It just has to come to me now.

My hope was, and is, that I’m not going to need to say goodbye to anyone. I’ll hopefully just slip away in the night, and would be happy at the prospect of friends saying “I just spoke with Sandy the other day, discussing the kids, our vacation plans. Who would have imagined that she’d be gone just like that?”

Of course it’s not “just like that”, the way out the door has been agonizingly prolonged. Even so, I’m not yet ready for goodbyes. In fact, I’m still making new friends along the way (a brave lot, wouldn’t you say?)

Tuesday, June 18, 2013

Maybe Not What You Think…

An image that was a client favourite when it was available for rental at the Art Gallery of Hamilton in Ontario, Canada. Nope, I didn’t use Adobe Photoshop to get this effect. Nor a camera.

I’m honoured to know that the original print now hangs in the home of friends living in the state of New York. A kind reminder that although I’m not photographing anymore, my work endures.

Lemons

You can download this image by clicking on:

https://www.dropbox.com/s/fbmpo498byaotxf/Lemons.jpg

Monday, June 17, 2013

Learning to Trust…

I’ll trust you until you give me a reason not to.

This wasn’t an easy philosophy to embrace, it took me almost thirty  years to get there. I’d been provided with ample opportunity in my early life to learn that sometimes people had hidden agendas, that their actions could be highly destructive to others. That others could act with utter disregard for the welfare of others, leaving a trail of misery behind them. And I’ve been reminded a few times since.

I wanted my daughter’s world to be different. It’s not that I wanted to do the impossible and shield her from all that was difficult or painful, but I did want to teach her to give others the benefit of the doubt.

It started at home. To this day, I’ve never searched her personal belongings. Never peeked in her diary, never opened up her phone (and she can attest to the fact that I can’t even figure out how to turn the alarm off when it trills while she’s in the shower, much less look up any info).

The deal was and is, unless she gives me reason to worry about her safety and wellbeing, her privacy is respected. And she respects mine. It’s brought us to a place where we can feel safe to speak to each other about anything on our minds, and it’s an amazing place to be with her.

When it came to others, I asked her to assume the best of intentions. When someone cuts you off in your driving lane, they might be trying to reach a loved one who’s taken ill. When someone is rude to a store clerk, maybe they’ve just learned that their job is in jeopardy.

We all have bad days, and we all at times take it out on others. And yes, sometimes people are complete and utter jerks. My suggestion to Suzanna however was to give them more than one chance to prove it.

I’m not entirely sure at this moment if this was indeed the healthiest way to look at the world. I’ve found myself too many times over the years excusing inappropriate behaviour, thinking that surely the person who was being hurtful was just having a bad day and tomorrow would be better. Surely nobody could be that indifferent to the feelings of others. Indeed, sometimes they can.

Our faith in the world outside of this apartment has been tested again over the last weeks. A casual acquaintance of my daughter’s was found murdered recently. Disturbingly, she was a stone’s throw from the young man’s body before it was discovered. She was at the neighbouring car repair shop only due to the actions of a person who drove into our old clunker and left without leaving a note a few days earlier. Our car (nearly as old as Suzanna) literally held together with a bungee cord on the drive there to prevent her from being pulled over by the police.

A racist comment from a customer at her place of work. And not the first one. Me tripping across the “hate map” online, a deeply disturbing mapping of tweets sent from across the U.S. containing phrases indicative of racism, homophobia and intolerance for the disabled. Would a Canadian “hate map” prove just as unsettling?

A theft from our apartment, ill intent has also crept in here. Really? We have next to nothing as it is, yet someone helped themselves to a little bit of the little we have left.

I still have numerous examples held up to me daily about what is good in the people around me, and I won’t let go of the faith that there’s far more good than bad out there.

However world, please show my daughter a sign that despite the risks, trusting in others is ultimately more rewarding. A few jerks are blocking the grander view right now.

Sunday, June 16, 2013

The Slow Burn…

A topic that comes up with others – am I grateful that I have had my chance to say goodbye, or would I rather that my death would have come without warning?

I don’t know that I could answer that one consistently, there are many days that I believe that it would have been much easier on myself and my daughter had I had a quick and fatal heart attack. Goodness knows that my heart keeps unsuccessfully testing out that game strategy.

There are days that the suffering for both she and I can be unbearable. Trying to make the most of our days together, yet me being so limited in my energy and mobility making it all that more difficult to forget that which always hangs over our head.

Knowing that my time is limited, this is not how I would choose to spend this time with her. I’d have taken her travelling, to all the places I promised I would when she was small. We’d be zipping around the city together, visiting whatever restaurants caught our fancy. We’d go to the movies, we’d entertain our friends. We’d drive into the country far away from the city lights on summer nights to watch the meteor showers, laying on our backs anxiously waiting for a chance to wish upon a falling star. We’d chase the northern lights. How could I have lived in Winnipeg for two years and not noticed them? It was a time long ago when I didn’t yet appreciate the wonders around me.

What I wouldn’t have chosen is for her to be here day in, day out looking after my every need. My heart breaks for her, every morning I wake up it starts to hurt all over again.

This morning we had quite a fright. A small electrical fire here in bed that could have had dire consequences had we not been awake at the time.

Had I been on my own this morning, things may not have turned out as they did. Suzanna’s quick thinking, and ability to move much faster than I can saved the day.

As much as I’m overwhelmingly relieved that Suzanna was unharmed and our neighbours were spared danger, the experience awakened in me a deep sadness today in being reminded that more suffering still lies ahead for both of us.

When Suzanna comes home tonight from a visit with her father, she’ll snuggle and as always tell me how much she loves me. A big part of me will be wishing that my body would just let go and allow her to get on with the rest of her life. I’d think it far from selfish if she were wishing for the same, a chance to bring this chapter to a close and no longer live on this tightrope.

Saturday, June 15, 2013

Zero Minutes of Fame…

Another image to share, this one has a fun story behind it.

This photo was taken in Caledon, Ontario at dawn, having left home at around 4 am to reach my destination in time. Although I had a digital camera at the time, I often preferred to shoot film for my landscape work for both colour and black & white.

For several years my images had been represented by a Toronto gallery which rented images to set designers for TV and movies. Imagine my thrill when I received a letter from Twentieth Century Fox asking permission to use this image on set for the movie “The Sentinel” . Of course I said yes!

We went to go see the movie in the first few days of its theatrical release. Could I have missed it in the background of one of the scenes whilst I was concentrating on the plot (which I thought might have been  hard to do given my level of excitement)?

When the movie came out as a rental months later I gave the search another try. Still no luck. If actors could deal with ending up on the cutting room floor certainly I could handle a bit of disappointment.

What made it less disappointing was hearing that the framed image was indeed used in the movie, and one of the actors liked it enough to purchase it for themselves. My gallery wasn’t at liberty to tell me who the purchaser was, but given the secrecy I’d like to believe that the image now resides in the collection of Michael Douglas, Kiefer Sutherland or Eva Longoria.

I may not have had my moment of glory, but it’s always nice to be invited to the party.

sentinel

https://www.dropbox.com/s/h0lbmjerqljo1t5/sentinel.jpg